Caring for
each person
helps us
advance

AFDE supports families affected by ectodermal dysplasia, the most common form of which is XLHED. These are rare genetic diseases, which affect sweat glands, hair, teeth and nails. They can for example cause intolerance to heat or light and severe tooth agenesis. People affected attract unwanted attention, which can cause suffering. I got involved six years ago because some members of my family were directly affected. AFDE offers families trips and contributes to research projects. We are currently participating in the EDELIFE clinical trial on prenatal treatment of XLHED, conducted by Pierre Fabre and the EspeRare Foundation. It is revolutionary, and could make all the difference for these children and their families. Pierre Fabre’s commitment to these rare diseases is a real opportunity.

We are committed to helping patients take responsibility for their treatment to improve their daily lives. Eczema is an immune system disease that affects 1 in 5 people worldwide. Patients can use the ECZEMA CARE+ mobile app to track their symptoms, share this information with caregivers and receive personalized advice. It is a comprehensive tool designed to help manage the disease. We are going to integrate a predictive dimension, using an algorithm based on artificial intelligence, which will allow patients to anticipate the evolution of their disease. This app also provides valuable data for our clinical studies, aimed at advancing protocols and best care practices.

Maison des Patients is a unique place in France, created thanks to the support of Pierre Fabre. It’s a project I’ve been working on for a long time and which is linked to my personal journey. My son-in-law, who has leukemia, had to go to Marseille to receive an allograft. So we had to manage our everyday life here and find a place to live there. This is why the Maison des Patients offers both temporary accommodation for cancer patients and their family as well as free supportive care, including psychological support, beauty care, physical activities and even gardening. It’s a living environment, a place for sharing experiences and discussion, it helps to break social isolation and improves the well-being of patients.

I strongly believe in the importance of pharmacists adopting eco-responsible practices, such as eliminating single-use bags and encouraging the sale of bulk. Thanks to the support I received from Pierre Fabre Laboratories and the Primum non nocere® agency, I was able to take the leap. After a six-month certification course, my pharmacy received “gold” THQSE® certification. It has been both a demanding and exciting process for the entire pharmacy team. It provides a framework for more responsible and sustainable practices, and also meets a growing demand from patients, especially the younger generations. I joined the PHORSE alliance of pharmacies committed to CSR to encourage my colleagues to also become involved. I am convinced that together we can meet the challenges of sustainable development!