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Press ReleasePierre Fabre and the EspeRare Foundation start the EDELIFE clinical trial of a prenatal treatment for a rare genetic disease, XLHED15 November 2021Geneva, Switzerland, Castres, France (November 15, 2021) – The EspeRare Foundation and the Pierre Fabre group announced today the start of the EDELIFE clinical trial aimed at confirming the safety and efficacy of ER004, a prenatal treatment for XLHED (X-linked Hypohidrotic Ectodermal Dysplasia), a rare and debilitating congenital disease. If positive, the study could lead to the first approved treatment for XLHED by 2026.
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Press ReleaseRARE DISEASE DAY – February 28th, 20236 February 2023Pierre Fabre pursues its commitment against rare diseases in the pediatric, oncology and dermatology fields. The diseases are rare, but they impact a lot of people : nearly 300 million people are affected worldwide1.

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