Pierre Fabre Foundation: 10 years of action in the fight against sickle-cell disease
22 February 2017
The world’s leading genetic disease, sickle-cell disease affects 50 million people
The most common genetic disease in the world, 50 million people affected, the fourth leading pandemic in Africa, more than 300,000 infants born annually with sickle-cell disease in sub-Saharan Africa, an under-five mortality rate estimated at 50%: these figures spurred the Pierre Fabre Foundation to commit to combating this disease that receives very little media coverage.
10 years of action in the fight against sickle-cell disease
The fight against sickle-cell disease is one of the Pierre Fabre Foundation’s 4 areas of intervention. In 2006, the Foundation set up a consortium to build a reference center for combating the disease in Southern countries. The Sickle-Cell Disease Research and Control Center was inaugurated in 2010 in Bamako (Mali).
To date, and after 10 years of experience in combating this disease, it runs 7 active programs in 9 countries (Mali, Senegal, Togo, Burkina Faso, Cameroon, Congo-Brazzaville, Democratic Republic of Congo, Madagascar and Haiti).
The Pierre Fabre Foundation’s actions against this disease, focused on neonatal screening and access to care, have led to:
- The implementation of 7 active disease control programs in 9 Southern countries and the investment of more than 7 million euros
- More than 87,000 screenings carried out on the African continent and more than 50,000 consultations at the Bamako Sickle-Cell Disease Research and Control Center and 7,300 sickle-cell patients monitored
- A reliability study launched for a rapid screening test on more than 3,000 newborns, children and adults (Drepatest Program)
The Pierre Fabre Foundation is the world’s leading player in the fight against sickle-cell disease in Southern countries, and has been invited to present its action at the 3rd Global Congress on Sickle-Cell Disease in Bhubaneswar, India, from February 21-24, 2017.
The Pierre Fabre Foundation: Working for Health in Southern Countries
A government-recognized public-interest organization since 1999, the Pierre Fabre Foundation works to give people in Southern countries better access to quality drugs and healthcare.